Caregiver Education Survey

Thank you for your interest in participating in this survey being administered by QuestionPro, on behalf of the Cancer Patient Education Network (CPEN), The Health Care Education Association (HCEA), HealthEd On Demand and SurroundHealth. Following the brief screening, the survey takes about 20 to 25 minutes to complete.

To determine if you are eligible to participate in the survey, please answer the following questions:

* Do you work or consult for a healthcare advertising or marketing company?

Yes

* Which best describes the category of work you do? (Select only one answer)

I work exclusively within a healthcare setting including a hospital, ambulatory care (outpatient/clinic) or private practice.

Some (but not all) of my work involves working within a healthcare setting.

My work does not involve working within a healthcare setting.

* Please review the list below and check all of the degrees/credentials that you currently hold. (Select all that apply).

For the purposes of this survey, the term caregiver refers to an unpaid family member, friend, or neighbor who provides care to an individual who has an acute or chronic condition and needs assistance at home with managing a variety of tasks and complex care.

* Do you supervise, coordinate, or are you directly involved in providing caregiver education?

Yes

Who are you?

Your responses will be kept confidential and no personally identifiable information will be included in the survey report.

Please enter your contact information so we can send you the survey results. We will not sell or use your personal information.

* First Name :
* Last Name :
Zip Code :
* Email Address :

Thank you. You have completed the screening. The survey will take about 20 to 25 minutes to complete. The Progress Bar at the top of the screen will let you know how much you have completed. Please note that after you click Continue, you can’t change your answers or go back in the survey.

Before you start the survey, please review the information below:

What is the purpose of the survey?

The overall goal of the survey is to identify unmet needs in caregiver education to support and further the dialogue on how to enhance education in this area.

What is caregiver education?

For the purposes of this survey, the term caregiver refers to an unpaid family member, friend, or neighbor who provides care to an individual who has an acute or chronic condition and needs assistance at home with managing a variety of tasks and complex care.

Where will the survey results be published?

The sponsoring organizations, CPEN, HCEA and SurroundHealth, will share the results of the survey with their members and may present the survey findings via listservs, in professional publications and at professional conferences. All data will be reported in aggregate. All responses are confidential and no personally identifiable information will be included in the report. All survey respondents will receive a complimentary copy of the executive summary and full report. and be entered into a raffle to win one of four $25 Amazon Gift cards.

If you have any other questions, please email us at [email protected]

The next set of questions focuses on your specific work with patients in the healthcare setting. Please select the answer that best describes your practice and your patient population.

* What is the patient setting in which you currently work? (Select all that apply.)

* Which of the following best describes the location of your healthcare setting:

Urban

Suburban

Rural

* From what age group(s) are most of the patients you directly work with? (Select all that apply)

Pediatrics

Young adults

Middle-aged adults

Older adults

* What percentage of the patients you directly serve are of lower socioeconomic status?

* From the list below, please indicate up to the top three health conditions of the patients you work with? (Select three)

The next set of questions focuses on the formal education and support that your organization provides for caregivers. As a reminder, the term caregiver refers to an unpaid family member, friend, or neighbor who provides care to an individual who has an acute or chronic condition and needs assistance managing a variety of tasks and complex care.

Please consider caregiver education to be education that is specifically provided to the caregiver. Do not consider patient education that is specifically for the patient.

* Does your organization provide formal education classes or programs for caregivers?

Yes

I don’t know

* How is caregiver education structured at your organization? Please select the most common method.

Group classes conducted within your healthcare setting

At the caregiver’s home

Family consultation

Program as part of a support group

At a community-based setting

Part of outpatient follow-up visits

Online education

One-on-one individualized instruction within your healthcare setting

Other

* Thinking about the most common method of caregiver education that you just selected, how long is the typical duration?

1 hour or less

More than 1 hour but less than 3 hours

3 hours to less than 5 hours

5 hours to less than 8 hours

8 hours or more

* Who is responsible for the formal education of caregivers in your organization? (select all that apply)

* Below is a list of content areas that may be addressed during formal caregiver education programs. Please select all that are covered in classes at your organization. (Select all that apply).

Skills needed to care for the patient in the home environment – bathing, feeding, lifting,

Ambulation

Safe medication administration, including dose and timing

Wound and dressing care

Signs and symptoms that require immediate contact with the health care provider

Operation and maintenance/cleaning of medical equipment including breathing apparatus, wheel chairs, pumps – do we need more?

Care of a central line or drainage tubes

Other

* When are caregiver education classes typically held? (Select all that apply)

Monday through Friday between 9 and 5

Evenings

Weekends

* How often are caregiver education classes held?

* Caregiver attendance at our formal education program is:

Lower than expected

About what is expected

Higher than expected

* How do caregivers learn about the programs or classes for caregivers? (Select all that apply)

* Do the participants complete a formal evaluation following the class?

Yes

I don’t know

* Do you provide caregiver programs in languages other than English?

Yes

* Is there anything that you do to ensure that non-English speaking caregivers have access to classes/education sessions? (select all that apply)

Distribute promotional materials via social worker, patient ombudsman and/or physician

Offer classes in languages other than English

Post signs in the healthcare facility

Other

* How do you ensure your caregiver education is culturally appropriate? (select all that apply)

Have materials available in a variety of languages

Follow health literacy guidelines

Collaborate or consult with diverse communities

Pre-test materials

Incorporation of cultural knowledge and preferred choices in materials development

Follow a set of guidelines that my organization or another organization has created to develop culturally appropriate materials

I do not ensure caregiver education is culturally appropriate

None of the above

Other

* Is information provided to the caregiver to use as a reference when caring for the patient in the home environment?

Yes

* If yes, which topics are provided? (Select all that apply)

Skills needed to care for the patient in the home environment – bathing, feeding, lifting

Ambulation

Safe medication administration, including dose and timing

Wound and dressing care

Signs and symptoms that require immediate contact with the health care provider

Operation and maintenance/cleaning of medical equipment including breathing apparatus, wheel chairs, pumps – do we need more?

Care of a central line or drainage tubes

Other

* Where do you obtain most of your caregiver education materials?

Non-profit or advocacy groups

The government

Pharmaceutical companies

I develop the materials

Online patient education library (which is part of the practice’s website and/or integrated into the electronic health record system)

I do not have caregiver education materials

Other

* How often do you develop your own materials to use for caregiver education?

Never

Seldom

Sometimes

Often

* Which of the following theories or approaches do you use to develop your caregiver education?

Adult Learning Theory

Family Systems Theory

Other

* Caregiver education can be delivered through a variety of formats. Below is a list of common formats, please select all that you typically use. (Select all that apply)

* Which of the following devices do you use to support caregiver education? (Select all that apply)

* Which educational approaches do you think produce the best outcomes for caregivers? (select all that apply)

Group classes conducted within your healthcare setting

At the caregiver’s home

Program as part of a support group

At a community-based setting

Part of outpatient follow-up visits

Online education

One-on-one individualized instruction within your healthcare setting

Other

* Considering the approaches you mentioned in the previous question, what is the reason you think these caregiver approaches have worked so well? (select all that apply)

Evidence exists to support the intervention

Takes advantage of newer technology

Engages learners

Can be easily adapted to meet the needs of a variety of learners

Is culturally sensitive

Other

* What educational approaches targeted to caregivers do you think produce the best outcomes for patients? (select all that apply)

Group classes conducted within your healthcare setting

At the caregiver’s home

Program as part of a support group

At a community-based setting

Part of outpatient follow-up visits

Online education

One-on-one individualized instruction within your healthcare setting

Other

* Considering the approaches you mentioned in the previous question, what is the reason you think these patient approaches have worked well. (select all that apply)

Evidence exists to support the intervention

Takes advantage of newer technology

Engages learners

Can be easily adapted to meet the needs of a variety of learners

Is culturally sensitive

Other

* If you had no limitations, what would be an ideal approach to caregiver education?

* Does your organization have any partnerships with community-based organizations to support caregivers?

Yes

I don’t know

* How often do you refer caregivers to these community-based organizations?

Never

Rarely

Sometimes

Often

* How often do issues arise due to inadequate caregiver education at your healthcare setting?

If caregivers receive inadequate education, how often does the following occur:

Are there any other consequences of inadequate caregiver education that you have seen?

* Can you share a particular instance or story related to inadequate caregiver education? Remember, that all information will be kept confidential but please do not share any personal or identifying details.

The next question asks you to consider support for the caregiver

How often do the following occur if the caregiver does not receive adequate education?

Is there anything else you have noticed if the caregiver does not receive adequate education?

Below is a list of barriers that may prevent adequate caregiver education at your institution. Please indicate how much you agree with each of the following.

* What do you experience as the greatest gap in providing caregiver education and support?

How to address ongoing/follow-up needs after initial education

Addressing both the needs of caregivers themselves while providing the information caregivers need about the care of their loved one.

Financial/resource concerns

Lack of time during hospital clinic appointments

Difficulty for caregivers to find time to attend a program

Individual needs make group classes difficult, yet social isolation makes group classes seem like a good option

Other

* What are you favorite online and written resources for caregiver education?

Is there anything else you would like to share with us as it relates to best practices for caregiver education?

The next set of questions asks you background information about yourself.

* What is your job title?

* How many years have you been in your current position?

* How many years have you been working in the profession?

* Have you ever been a personal caregiver to a family member or friend?

Yes

* What is your age?

* What is your sex?

Male

Female

* What is your race? (select all that apply.)

White

Black or African American

American Indian or Alaska Native

Asian or Pacific Islander

* Are you Hispanic or Latino(a)?

Yes